wilsonsdisease.org.uk Report : Visit Site

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home about us | membership support group archives info centre newsletters patient's histories contacts wdsg-uk - membership if you are at all interested, please join. go to membership form wdsg-uk 2017 newsletter 2017 newsletter gift aid - donations wdsg-uk was granted charitable status by hmrc in 2010 and is recognised as a charitable company. as such, wdsg-uk is entitled to claim gift aid back on donations, where appropriate. if you wish to make a donation to wdsg-uk and to gift aid it, please complete this form if you wish to make a donation to wdsg-uk visit the virgin giving website wdsg-uk on facebook join us on facebook wdsg-uk pamphlet (2015) view interactive online download pamphlet affiliations british liver trust rare disease uk genetic alliance uk climb child liver disease foundation eurowilson welcome wilson's disease patient register uk any patients living in the uk who have been diagnosed with wilson's disease, will be eligible to have their details entered on 'the register' download registration form wdsg-uk - a support group for all this is the official website of the wilson’s disease support group – please take a look round. wdsg-uk was founded in the year 2000 by caroline simms (phd), and linda hart, to provide a support network for wilson’s disease patients, their families and friends. membership is open to all and covers the cost of our annual newsletter. the wilson’s disease support group - uk (wdsg-uk) is an all volunteer organisation which strives to promote the wellbeing of patients with wilson’s disease, their families and friends. the organisation aims to provide informative articles about the nature of the disease, articles written by patients, families and friends, about their experiences of the disease, recent progress in treatment and much more by way of an annual newsletter. the organisation also aims to promote networking of wilson’s disease patients and their families by helping and encouraging them to correspond with one another. the organisation also strives to promote a wider awareness of wilson’s disease within the medical profession. important news wdsg-uk dingbats quiz 2018 results of the 2018 dingbats competition london stations. thank you to everybody who took part and congratulations to the winner, ken dunkerley of chadderton, greater manchester. answers and the winner can be found by clicking on the image and downloading the results document. wdsg newsletter - 2017 our 2017 newsletter is now available to download on this website. visit our newsletters wdsg-uk annual meeting & 8th agm sunday 15 july 2018 cambridge rugby union football club, grantchester road, cambridge cb3 9ed the rugby club ( www.crufc.co.uk ) is on the western outskirts of cambridge, about 1.5 miles from the city centre. there is ample free car parking on site. google map for further details contact valerie wheater on [email protected] a message from valerie our annual meeting is open to all wdsg-uk members and will take place in cambridge on sunday, 15th july 2018. it is a perfect opportunity to meet other patients in a relaxed and informal way. for those of you who are not members of wdsg-uk, you would be very welcome to join us. please email val wheater on [email protected] for further information. let's make this year's meeting the best yet ! you can view last years report below . . . 2017 wilson's disease support group uk meeting & 7th agm sunday 23 july 2017 view our 2017 report availability of penicillamine for uk patients with wilson's disease. updated january 2017 following concerns about the supply of penicillamine for uk patients with wilsons disease, a hospital pharmacy has updated the information previously made available last year. download the statement wilson's disease patient register uk wdsg-uk is delighted to announce the launch of the wilson's disease patient register - uk, the main aim of which is to support medical research into wilson's disease. download the wd patient register leaflet view the online interactive version of the leaflet we encourage you to register now: download - registration form (pdf) download - how the register will work (pdf) any patients living in the uk who have been diagnosed with wilson's disease, whether or not they have received a liver transplant, will be eligible to have their details entered on 'the register'. if you are a wilson's disease patient, or are the parent or guardian of a child with the disease, and you would like to participate, please download the registration form and send the completed form to valerie wheater, the wd patient register co-ordinator, (details printed at the end of the form.) alternatively, for further details, please email her on [email protected] . for the information sheet on how the register will work, and to download the application form, please click on the above documents. research requests if you, as a clinician or research scientist with an interest in wilson's disease, have a request or an initial query relating to the register, please contact the register coordinator at the email address: [email protected] . request details should include the following: short synopsis of the research request including: nhs or other authorisation body details brief description of research, objectives and timescales patient involvement outline research contact details please note : a small wdsg-uk team will review and validate all research requests before agreeing to involve patients. wdsg management committee wdsg-uk management committee 2017/2018 chair jerry tucker hon treasurer & hon secretary valerie wheater member mary fortune member caroline simms disclaimer © copyright 2008 - 2018, wilson's disease support group (uk). all rights reserved

URL analysis for wilsonsdisease.org.uk

http://www.wilsonsdisease.org.uk/WDSG-P0.asp/wdsg-p01.asp
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/documents/london_stations_dingbats_2018_answers.pdf
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/documents/wd-patient-register-rev-print.pdf
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/#pr
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/documents/wdsg_uk_pamphlet_2015.pdf
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/wdsg-p7.asp
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/wdsg-p6.asp
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/wdsg-p10.asp
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/wdsg-p2.asp
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/documents/wdsg-uk-wilsons-disease-patient-register-form.pdf
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/wdsg-p0.asp
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/wdsg-p5.asp
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/documents/stock-availability-of-penicillamine-250mg-updated-240117.pdf
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/wdsg-p1.asp
http://www.wilsonsdisease.org.uk/WDSG-P0.asp/documents/wdsg-uk-accompanying-information-on-the-patient-register.pdf
climb.org.uk
raredisease.org.uk
google.co.uk
geneticalliance.org.uk
britishlivertrust.org.uk
crufc.co.uk

Whois Information

Whois is a protocol that is access to registering information. You can reach when the website was registered, when it will be expire, what is contact details of the site with the following informations. In a nutshell, it includes these informations;

Domain name:
wilsonsdisease.org.uk

Registrant:
Michael McConnell

Registrant type:
UK Individual

Registrant's address:
The registrant is a non-trading individual who has opted to have their
address omitted from the WHOIS service.

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 15-May-2017

Registrar:
M247 Ltd [Tag = M247LTD]
URL: http://www.m247.com

Relevant dates:
Registered on: 19-Dec-2007
Expiry date: 19-Dec-2018
Last updated: 15-May-2017

Registration status:
Registered until expiry date.

Name servers:
a.ns.ns247.net
b.ns.ns247.net
c.ns.ns247.net
d.ns.ns247.net

WHOIS lookup made at 04:36:02 10-Oct-2017

--
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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS wilsonsdisease.org.uk

  PORT 43

  TYPE domain

OWNER

  ORGANIZATION Michael McConnell

TYPE
UK Individual

ADDRESS
The registrant is a non-trading individual who has opted to have their
address omitted from the WHOIS service.
Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 15-May-2017

DOMAIN

  SPONSOR M247 Ltd [Tag = M247LTD]

  CREATED 2007-12-19

  CHANGED 2017-05-15

STATUS
Registered until expiry date.

NSERVER

  A.NS.NS247.NET 89.238.129.66

  B.NS.NS247.NET 89.238.133.66

  C.NS.NS247.NET 23.92.16.125

  D.NS.NS247.NET 106.186.115.231

  NAME wilsonsdisease.org.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED yes

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